Fluctuations

As I drive to dialysis, I greet the dawn of the New Year. It’s been a year and a half since my kidneys stopped working, and my journey to kidney recovery began. Stronger, healthier, and happier, I’ve grown in my depths and abilities as a human being beyond what I thought possible. As a perpetual giver, I’ve had to learn to receive. I’ve learned to stop sacrificing myself and my health. If I’m not healthy, then I can’t possibly offer help to others. Raised to be fiercely independent, and taught to rely only on myself (and the Divine) by an endless stream of takers, I didn’t know how to open up to the people offering hands and hearts of support. Now I am willing to ask for help, a hug, or a place at someone’s holiday table.

The holidays were a mix of emotion, as I continued to face the difficulties of my family and various past friends refusing to take my situation seriously. Perceptions are unique, and everyone has struggles in life. Just as I recognize that the nurse in Trinidad, who immigrated there after surviving horrific atrocities in Rwanda, has been through tragedies that make my kidney failure look like a walk in the park; so should people see that a minor cold, sinus infection, or battling a few pounds doesn’t compare with the immediate and ongoing life-threatening reality of losing an essential organ’s function. The tragedy of kidney failure has certainly clarified the relationships in my life.

I’ve been reluctant to confess my disappointment in my family’s support, and how the lack of compassion from previously close friends has hurt me. I’m not generally one to complain in life, but any major health crisis often means a loss of more than just one’s bodily well-being. The impacts are also felt emotionally, and psychologically. In mentioning this, perhaps more people will reach out to others, as even the strong and capable need assistance when they are hit hard in life. Thank you to those, who have reached out to me, checked up on me, and made sure I could pay my bills.

The prospect of sitting home, alone, on Thanksgiving drove me to post on my private Facebook page: I offered homemade pie in exchange for a seat at a table. Old friends, and new ones, opened their homes and hearts to me over Thanksgiving and Christmas. Memories of easier holiday times surfaced, and I ached for the days when I used to gather with my family. Now each of my family members is caught up in his or her own life, and spending time with their friends and in-laws, or playing video games is more important. I yearned for my grandmother, Patricia, the matriarch of the family, the glue that held the family together. She led by example and word. Her grace, hospitality, and generosity still shape me today. And her pie-making lessons allow me to make flaky piecrust.

At the same time I was grateful to be alive during another holiday season. I relished being able to travel north a few hours, and skip dialysis on Christmas Day. Riding in the car’s passenger seat, while watching the change in scenery, brought me happiness. Seeing my name on a stocking, and the lovely little gifts in it on Christmas morning went a long way in making me feel welcome. The previous year I spent Christmas alone.

Vinyasa yoga in a new place was as life affirming as always, and I marveled at the ability of my body to move into the asanas. Ice skating encouraged me to stretch my body in new ways, as I savored the cold and pushed myself around the rink. The blinking lights in the darkness of the laser tag room enticed me to let go and play. I’d found another thing to enjoy, and a way to release the energy and emotions within. Conversations, delicious cookies, bouncing black squirrels, and winter rainfall closed out two thousand and twelve.

Over the last few months, the stem cell treatment has been working its magic. The day the length of my dialysis treatment was reduced to two and half hours per treatment was an exciting day. I regained three hours of freedom per month! My blood pressure has dropped down to normal with lower and lower levels of medication. Many of my blood tests are now within normal range, and my weight has stabilized. There have been fluctuations in test results, ups and downs in my creatinine and BUN levels. The biggest change is how amazing I feel, and I am brimming with energy. My immune system has become resilient, and I can feel the difference in my body.

Now it is a waiting game. I believe that the worst of it is over. Undetected infections have been found and treated, so that I no longer have ongoing inflammation in my kidneys. I’ve gone nine months without any visits to the hospital. Each day I wonder how much longer I must tolerate the temporary residence of the catheter in my chest. I no longer feel sick. I no longer feel like a dialysis patient.

Time passes by, and each second draws me closer to the end of this particular part of my life’s journey. I’m excited to see what lies ahead, as I carry the Light along a path that reveals itself with each passing breath. It may be a path that only I see, and I hope sharing it with you brings some Light into your life.

A lifetime is an opportunity to experience God in a different way. Every moment propels you closer to recognizing this essence, your Spirit, within yourself and everything around you.

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